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European PKU guidelines

What good PKU care looks like, and what North Carolinians get.

We compared NC PKU care to the 2025 EU recommendations for care.

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Not fundedNo payer is required to cover it
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US standard differsUS guidance sets a different rule
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No US standardUS guidance does not address it
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No accessNo provider or centre in reach
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Partially deliveredDelivered inconsistently
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MetDelivered as recommended
van Wegberg AMJ, MacDonald A, Ahring K, et al. European guidelines on diagnosis and treatment of phenylketonuria: First revision. Molecular Genetics and Metabolism. 2025;145(2):109125. doi.org/10.1016/j.ymgme.2025.109125. Open access, CC BY 4.0.